Most days Cystic Fibrosis really sucks

"If only EssExTee could be so grossly incandescent" (essextee) 12/27/2017 at 19:06 • Filed to: None

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Today, however, it gets a very special girl (and her family!) to the front of Disney’s hour+ long ride lines.

Rusty Vandura - www.tinyurl.com/keepoppo > If only EssExTee could be so grossly incandescent 12/27/2017 at 19:39

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Take the good with the bad.

Blunion05 drives a pink S2000 (USER WAS BANNED FOR THIS POST) > If only EssExTee could be so grossly incandescent 12/27/2017 at 19:49

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Does the condition limit which rides she could get on?

I don’t know much about this condition.

WilliamsSW > If only EssExTee could be so grossly incandescent 12/27/2017 at 19:56

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I hope she had an AWESOME day!

If only EssExTee could be so grossly incandescent > WilliamsSW 12/27/2017 at 20:02

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As awesome as a 7yo’s first trip to Disney can get!

WilliamsSW > If only EssExTee could be so grossly incandescent 12/27/2017 at 20:05

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I’d say that’s pretty awesome!

If only EssExTee could be so grossly incandescent > Blunion05 drives a pink S2000 (USER WAS BANNED FOR THIS POST) 12/27/2017 at 20:06

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No, but among the many many side effects the disorder causes she has respiratory issues, stamina trouble, and she gets dehydrated very easily. It’s enough that a whole day here wouldn’t be possible without that fast pass.

Blunion05 drives a pink S2000 (USER WAS BANNED FOR THIS POST) > If only EssExTee could be so grossly incandescent 12/27/2017 at 23:12

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That’s gotta be the best use of a fast pass ever :’)

Verdog ~ manual Bro, Bro - HellHawk Equipped > If only EssExTee could be so grossly incandescent 12/28/2017 at 18:37

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Awesome!

I actually just read an article about disabled people pimping themselves out for big $$$ to rich families. Was shocked.

If only EssExTee could be so grossly incandescent > Verdog ~ manual Bro, Bro - HellHawk Equipped 12/28/2017 at 20:05

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I mean, if the money improves their quality of life then yeah that’s pretty damn smart

Verdog ~ manual Bro, Bro - HellHawk Equipped > If only EssExTee could be so grossly incandescent 12/29/2017 at 20:13

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Ehhh, it ruins the lines for those that need it. Truely.

They also talked about parents “renting kids” also.

I agree with your family and the awesome time you described, but this was sad.