Little road trip

"WesBarton89 - The Way to Santa Fe" (wesbarton89) 12/09/2014 at 09:35 • Filed to: None

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So, we took my daughter to WVU Children's hospital to see a pediatric GI doctor. Possible signs of Crohn's Disease. I've had it myself since I was 5, and the signs are pretty similar. She's waiting to see the doctor now. Pretty much blows.

ttyymmnn > WesBarton89 - The Way to Santa Fe 12/09/2014 at 09:36

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I'm sorry to hear that. Best wishes to your daughter and your family.

$kaycog > WesBarton89 - The Way to Santa Fe 12/09/2014 at 09:39

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Yeah, that blows..........a lot. Oppo is here for you.

WRXerFish - WRX-Wing pilot > WesBarton89 - The Way to Santa Fe 12/09/2014 at 09:39

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I feel for you. Best of luck.

505Turbeaux > WesBarton89 - The Way to Santa Fe 12/09/2014 at 09:41

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Lame, but good to get it figured out now. Good luck with it man!

thebigbossyboss > WesBarton89 - The Way to Santa Fe 12/09/2014 at 09:44

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My friend got hospitalized with that disease about a decade ago. Hope everything turns out for your little one!

Leon711 > WesBarton89 - The Way to Santa Fe 12/09/2014 at 09:52

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Hope you get the support you need man, as you know Crohn's isn't fun.

Oppo is always here for you.

OPPOsaurus WRX > WesBarton89 - The Way to Santa Fe 12/09/2014 at 10:04

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childrens hospitals suck to be at, everyone would rather be at the payground. i spent a couple weeks back in the day having a rod put in my back. I was there a bunch too for a close cousin who actually had Crohns. she gets along just fine now and that was 10 yrs + ago. Good luck.

Rock Bottom > WesBarton89 - The Way to Santa Fe 12/09/2014 at 10:27

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On the flip side, it's a very treatable disease and she's fortunate you caught it when you did! The fact that you've lived with it all these years will put you in a better position to help her through it as well.

Keep your chin up, Jalop! We got your back!

WesBarton89 - The Way to Santa Fe > WesBarton89 - The Way to Santa Fe 12/10/2014 at 08:18

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They did some blood work, they want to check for different things, like wheat and gluten allergies, too much juice, or possible parasites such as giardia. We will see what happens. The doctor is trying to steer away from Crohn's. But, if she does have it, with me having it, I know a lot of what to expect. Either way, we ended up having a good day and went to lunch and did some shopping. It was fun overall.

thebigbossyboss > WesBarton89 - The Way to Santa Fe 12/10/2014 at 08:23

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Well I guess that's good man. Goota make the best of all the situations right?

Denver Is Stuck In The 90s > WesBarton89 - The Way to Santa Fe 12/10/2014 at 08:28

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I myself have both Crohn's disease and Celiac Sprue Disease. I have been 100% gluten free since 2002. I am actually the first confirmed case of extra-gasterointestinal ocular granuloma inflammation. I know how hard it can be. What drug regimen are you on? I'm on Pentasa, Imuran and Humira along side my Gluten Free Diet

505Turbeaux > WesBarton89 - The Way to Santa Fe 12/10/2014 at 08:28

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glad you made the best of it. Hope it all shakes out ok!

$kaycog > WesBarton89 - The Way to Santa Fe 12/10/2014 at 08:42

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Thanks for the update.

ttyymmnn > WesBarton89 - The Way to Santa Fe 12/10/2014 at 08:44

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The doctor is trying to steer away from Crohn's.

Let's hope for the best. I've found that diagnosing illness is much like bird watching. Sure, it could be the ruby throated whatsit bird of Borneo, but it's more likely to be a mockingbird. You always have to rule out the most common things first. At worst, it's a condition you know about and can help her with.

WesBarton89 - The Way to Santa Fe > Denver Is Stuck In The 90s 12/10/2014 at 08:48

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Geez. Right now, I'm unmedicated and doing ok. During a flare up I would take pentasa, a short dose of prednisone and mercaptopurine. I also had a feeding tube for a while as well. I did get a couple of infusions of Remicade when I was little as well.

WesBarton89 - The Way to Santa Fe > ttyymmnn 12/10/2014 at 08:53

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I am hoping for the best, indeed you are right. I've had bad doctors and excellent ones. This one seemed pretty good, and I went to the same hospital for years that my daughter went to yesterday, and I was always happy with them.

Denver Is Stuck In The 90s > WesBarton89 - The Way to Santa Fe 12/10/2014 at 09:00

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Oral Steroids give my psychiatric side effects, I cant take them. I also tried remicade for a good 6 months, The infusions were not fun. It ended up not working for me, Plus it was outrageously expensive. Luckily (mainly due to Imuran and Humira) Ive been in remission for 5 years. But every time I get sick with a cold or something and have GI symptoms, I worry my Crohns is back. Sucks being chronically ill. I actually wasnt officially Diagnosed with crohns until 2007 when My bottom lip swelled to 3 times its size. They did a biopsy and low and behold, granuloma. They always thought I either had Ulcerative Colitis or crohns, but couldnt confirm either until Granulomas popped up. I had a distended belly until I was 15. I looked very malnourished.