Most days Cystic Fibrosis really sucks

Kinja'd!!! by "If only EssExTee could be so grossly incandescent" (essextee)
Published 12/27/2017 at 19:06

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STARS: 13


Kinja'd!!!

Today, however, it gets a very special girl (and her family!) to the front of Disney’s hour+ long ride lines.


Replies (10)

Kinja'd!!! "Rusty Vandura - www.tinyurl.com/keepoppo" (rustyvandura)
12/27/2017 at 19:39, STARS: 3

Take the good with the bad.

Kinja'd!!! "Blunion05 drives a pink S2000 (USER WAS BANNED FOR THIS POST)" (6speedhaven)
12/27/2017 at 19:49, STARS: 0

Does the condition limit which rides she could get on?

I don’t know much about this condition.

Kinja'd!!! "WilliamsSW" (williamssw)
12/27/2017 at 19:56, STARS: 1

I hope she had an AWESOME day!

Kinja'd!!! "If only EssExTee could be so grossly incandescent" (essextee)
12/27/2017 at 20:02, STARS: 2

As awesome as a 7yo’s first trip to Disney can get!

Kinja'd!!! "WilliamsSW" (williamssw)
12/27/2017 at 20:05, STARS: 1

I’d say that’s pretty awesome!

Kinja'd!!! "If only EssExTee could be so grossly incandescent" (essextee)
12/27/2017 at 20:06, STARS: 0

No, but among the many many side effects the disorder causes she has respiratory issues, stamina trouble, and she gets dehydrated very easily. It’s enough that a whole day here wouldn’t be possible without that fast pass.

Kinja'd!!! "Blunion05 drives a pink S2000 (USER WAS BANNED FOR THIS POST)" (6speedhaven)
12/27/2017 at 23:12, STARS: 1

That’s gotta be the best use of a fast pass ever :’)

Kinja'd!!! "Verdog ~ manual Bro, Bro - HellHawk Equipped" (verdog)
12/28/2017 at 18:37, STARS: 0

Awesome!

I actually just read an article about disabled people pimping themselves out for big $$$ to rich families. Was shocked.

Kinja'd!!! "If only EssExTee could be so grossly incandescent" (essextee)
12/28/2017 at 20:05, STARS: 0

I mean, if the money improves their quality of life then yeah that’s pretty damn smart

Kinja'd!!! "Verdog ~ manual Bro, Bro - HellHawk Equipped" (verdog)
12/29/2017 at 20:13, STARS: 0

Ehhh, it ruins the lines for those that need it. Truely.

They also talked about parents “renting kids” also.

I agree with your family and the awesome time you described, but this was sad.